Looney Lupie Lady

Econobusters is one of my favorite savings blogs! I go there often to get tips, and ideas of how to save money and where to get the best deals. I think you might be interested to know that they have a gluten free Friday post! One of their staff has Celiac and is gluten free.

So here is the link and there is a great freebie involved so ENJOY!







God bless
Heather L

Well Lupus has shown it’s teeth again. There are no racial boundaries with lupus. In fact the statistics tell us that you are more likely to get lupus if you are a woman, and African American. But don’t think your Icelandic blood will save you. Lupus stretches into every corner of the world.

In a recent interview Rapper Trick Daddy a African American man said this,

“I am allergic highly to the sun, that’s my worst enemy. It’s like an AK-47 with a double clip on it.”

Here is the rest of the  post from BallerStatus.com about Rapper Trick Daddy.

Hm this has me wondering who else famous has lupus. I thought about adding several “juicy” stars names here. These are people who other say have or had lupus but that smacks too much of gossip. So here are the people that have confirmed that they have lupus.

Caroline Dorough-Cochran
Charles Kuralt
Elaine Paige
Flannery O’Connor
Hugh Gaitskell
Inday Ba (also known as N’Deaye Ba)
J Dilla
Leslie Hunt
Michael Jackson-has Discoid Lupus since early 1980’s (he now denies this)
Millie
Sophie Howard
Tim Raines

Ferdiand Marcos, former philipine dictator- died from lupus in 1989

Caroline Dorough-Cochran, sister of Back Street Boys, died at age 32

Mercedes Yvette, runner up to from Season 2 of America’s Next Top Model

Millie, President Bush’s Dog  ( I did not know dogs could have lupus.)

Seal,  singer -discoid lupus to face

Ray Walston- character Actor

Louisa May Alcott, an American author

American writer Flannery O’Connor

This list was compiled through internet search and a friend Chronic Chick lovely blog.  Stop on in and say hi to her!

Well we are not alone friends. And money doesn’t buy us health or one day extra here on Earth. So get right with the Lord and prepare for your heavenly body.  God bless!

For any person with chronic pain there is an on going need for pain relievers. The first thing I was told was try warm heat, exercising and Motrin when needed. I tried the warm heat, stretching (never quite made it to exercising) and Motrin.

I realized this week that I am taking Motrin everyday sometimes twice a day. The pain is steadily increasing and settling into several joints. My right ankle, upper left chest, jaw, and neck are annoying-painful to I’m-crying-help! painful.  I hesitate to bring this up with my dr because I don’t want to be seen as “seeking pain meds”.  Afterall I just got through the whole this is lupus sorry I had to go over your head deal.

Do any of you have this issue? Have you had to go above the OTC pain meds? I don’t want anything that will make me dopey or addicted. I just need more joint pain relief at times.  Any suggestions would be highly welcome.

Thank you friends for you time. May the Lord turn this bad thing, chronic pain, to His good!  I pray that your week is wonderful! I am going to post some pics of my seedlings tomorrow! I hope you enjoy. God bless!

I am so tired that my toe nails are tired! You heard me and if you have the same problems I bet you understand.

For the last 3 weeks I have had to run back and forth from the dr’s two times a week. My littlest baby (Peanut) showed signs of possible seizures. So testing galore. She is one and is also showing possible Reynaud’s! yikes have any of you ever heard of that in a child so small?

Anyway we are still waiting on results. I have shifted my appointments for the thyroid ultrasound and biopsy off slightly. I have to rest!

If any of you are homeschooling parents I have recently found a lovely site. Heart of the Matter I am the moderator on the forum for the Special Needs portion. I am going to ask if they have a special mom’s section for those of us with medical problems ourselves. Stop in and say hi!

Take care my friends and my God bless you with a pain-free day!

Lupus is really a pain in the behind! I had to go out three times this week. Each day at least part of the day was bright sunlight. I put on protection. It didn’t help I have mouth sores and this morning my hands were swollen and mostly useless.

So does sunscreen work for lupus patients? I am on an email loop. Several of the ladies cannot go out in the sun not matter the protection. I always assumed that I would be middle of the road and able with protection to go out.

I am not giving up yet. Though I am going to be much more careful. I am going to try some of the UV protection clothing. I am also going to get sunglasses that are UV protected. I found out the hard way this week that I get migraines from the sun.

I suppose everyone has this time of trial and error. So are there any tips out there?

Okay I sit here tonight with a pounding migraine, so I will make this short.

Today a friend did a talk at our MOPS group and pointed out how horrible the household chemical were. I realised that any time I have cleaned recently I have gotten a red rash over my hands and arms. I also get a headache and I tend to be more dizzy. Is this related. I think so.

No matter I have a household of asthmatics and they really don’t need airborne chemicals irritating their lungs. So I am going green and less toxic.

I am looking for good sites, recipes, tips and ideas to make this work.

Thanks so much friends. If you could say a prayer that this nasty headache is gone by morning. Good night.

Dear friends in Christ.

You hurt, your life is not easy.

The Lord is with you!

You deal with more medical things in one week than most in one year.

The Lord is with you!

The way is dim and you need a Light.

The Lord is with you!

My friend I am here. Not for myself but for He who lives forever more.

The Lord is with you!

I share my favorite verse so that you too may feel His presence at every moment.

You need to persevere so that when you have done the will of God, you will receive what he has promised.  Hebrews 10:19

God bless

Heather Laurie

I have had it with my gray walls. The owners before us painted everything gray. Not even and interesting gray more like quick-paint-it-so-we-can-move gray. Anyway I decided on the colors upstairs after a long struggle with my scaredy cat leanings to cream I decided on a autumn, warm orange.

So I get to Lowe’s and start looking around. I am a gardener and so I get sucked into the garden area. Then wander through the store trying to remember the things I wanted. Meanwhile hubby and kids are swirling around me. I stumbled on the paint aisle,”oh yeah I wanted paint”

Then I realize that my carefully chosen paint color was at home and with my fuzzy brain recently I couldn’t come up with the color, or the maker, and really anything. I stood in front of the paint chips ready to cry. Why is my brain so sluggish and fuzzy?!

Lupus! yes the beasty is goofing up my head.

I was able to find the paint I wanted thanks to my artist of a 11 year old. She went straight to the chip and handed it to me. This encourages me to make a plan though. I don’t want this to happen again.

1. Make a notebook: put ideas and pictures to take with me to the store.

2. Find a theme picture or make one. My best decorating experinces have been when I found a picture I liked and mimiced it. Or I found several items that I wanted grouped together. I glued them on one page so I could see them all at once.

3. Go shopping when least stressed. Going with all five kids and hubby was stressful and distracting.  Also be sure to have a drink with you and don’t be hungery.

4. Check out online shopping. I find that I shop only for my needs when I shop online. I also find that shopping for things like books is much easier. Recently when items are close together or brightly colored my eyes cannot make sense of it. It all blurrs together. Shopping online is much easier for me, as long as the picutures are good

5. Take a trusted helper. Talk to your helper/hubby about what you want to get and accomplish. So that when you are at the store they can help guide you. You could even delegate some of the running to them so that you can save your strength.

We here is to happy comfortable homes! God bless my friends!

Well I am begining to think that my flare is starting to go away!!! I have woken up several days in a row now with only slightly swollen hands and the extreme weakness in my hands has greatly lessened. I still need the cane to walk.  Hopefully though I am on the road to stability.

So that begs a question are you ever truely healthy again? Do you return to a pre-lupus flare level. I didn’t have the cane before, though looking back I needed it for months before I got it. Now I can only sometimes walk around the house with out it, never out and about without it.

I read these wonder stories about how everything is fine IF… usually that is followed by take your medicine and exercise. I agree those are good pursuits but if that was all there was to health who would need the heavy meds?

Those who have danced with the wolf longer than me what do you think?

Over the next two days advocates for lupus are going to be working in Washington DC.  If you follow the link in the last blog you can help from home.

I pray Lord that those in DC and beyond that are working to educate and inform the legislature speak clearly. With purpose and balance.  Lord we pray for a break through in lupus treatment.

Think for a moment friends twenty years from now. If you have lupus the chances of your children of relatives having lupus go up. Do you want to look in your daughter’s eyes after  her diagnosis and tell her I’m sorry I didn’t push for better treatments years ago. I DON’T! I pray that my children do not ever have to deal with lupus. But I know some one’s child will. I am going to email and make some phone calls tomorrow to help highlight the problem to my state and federal representatives.

God bless and take care my friends.